Blog Changes – Marfan Syndrome


This is just a short post to update everybody on the change to my blog.  You will notice that I now have a page entitled “Marfan Syndrome“.  I just thought it would be a good idea to make people aware of this disease, that I am afflicted with.  The page tells of my experiences with it and a link to the National Marfan Foundation.

My blog, as usual, will continue to be about, birding, nature, and wildlife photography.

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9 thoughts on “Blog Changes – Marfan Syndrome

  1. Thanks for speaking out Bob. I’m sure somewhere it has already helped another. May you continue to live out a relatively healthy life.

  2. Bob, you impress me. I had never heard of Marfan’s Syndrome, but after reading you page on it, I think I understand at least a bit about what you must go through. Keep fighting, and enjoy the life you’re given, and know that you have people around the world thinking of you and praying for you.

  3. A very good friend of mine lived with “Marfan Syndrome” as a day to day presence for all his life. He spent the last years of his life with us and was 79 years old when he died in a car accident. His condition made me think twice about complaining of my personal problems. You sure are a fighter Bob, I will keep you in my thoughts.

  4. Hi Bob, I did do some reading on it yesterday and was wondering how it affected you. I know now after reading your new page. It’s nice to know that you are doing fine with your meds and it doesn’t interfere with your life too much. 🙂

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